We have the pleasure of working with the BDFA – Batten Disease Family Association. They are a small charity who’s aim is to make sure no family suffering with the rare disease, called Batten Disease, should suffer alone. They also fund research projects to try and find a cure, as at the present time there is NO CURE.
We went to Coventry to film and photograph the weekend. Have a watch of the video, and visit their Facebook page, and give it a like!