Back in 2012 we were introduced to a brave young man, Kyran Richmond. Kyran has Batten Disease, an incurable disease that affects kyran in a variety of ways.
We got involved to help with a website, and also a video telling people about Kyran and his family and to raise awareness of the disease.
Back in 2012 we made the 1st film, it was used at a charity ball and also online. It been viewed over 2000 times. We then made a follow up film last year, to let people know how the disease is continuing to affect him.
We hope the vides raise awareness, and also funds for Kyran and research into a cure. You can visit Kyran’s Website here